Every year on August 3, there is a Cloves Syndrome Awareness Day. Nowadays, communities come together to exchange knowledge and materials regarding this uncommon congenital disease. There are only 200 confirmed Cloves cases worldwide, which indicates a lack of resources for research. Without greater awareness, affected families may never have access to effective treatment options. World Cloves Syndrome Awareness Day is observed every year. It urges everyone to take action and aims to mobilise the neighbourhood.
A rare condition called Cloves Syndrome affects newborns. Less than 200 cases of Clove have been documented so far in the world. Anomalies in the bone, joints, or blood vessels define this congenital disease.
The PIK3CA gene can develop mutations, which lead to Cloves Syndrome. The severity of the symptoms and the age of the child both affect their long-term health. The more quickly symptoms are identified by doctors, the more effective the treatment can be.
However, early detection is not always simple. Each child’s symptoms are very different from one another. What is worse than this? Although the disorder is present at birth, it might not be simple to spot right away.
Parents should generally be on the lookout for anything unusual, especially fatty masses on the back, belly, or flank. Check for wide spaces between the big toe and other toes; the majority of Cloves patients experience this symptom. Other signs may include bumps that resemble warts, spinal problems, limb abnormalities, or enlarged veins. There is currently no data to support a predisposition to this specific gene mutation. It happens on its own while the baby is still developing inside the womb of the mother.
Nothing is more upsetting than realising there is no way to prevent disease, especially when it affects young children. The goal of Cloves Syndrome Awareness Week is to raise public awareness. Better research can result in better treatments for Cloves patients with the help of education and empathy. The goal of Cloves Syndrome Awareness Day is to foster community solidarity and raise money for those who require medical care. Everyone should be able to access the right medical care and lead the best life possible. Discussion of it. Tell us your tales. The objective is to spread the word as widely as possible.
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