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Cloves Syndrome Awareness Day

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Cloves Syndrome Awareness Day

Every year on August 3, there is a Cloves Syndrome Awareness Day. Nowadays, communities come together to exchange knowledge and materials regarding this uncommon congenital disease. There are only 200 confirmed Cloves cases worldwide, which indicates a lack of resources for research. Without greater awareness, affected families may never have access to effective treatment options. World Cloves Syndrome Awareness Day is observed every year. It urges everyone to take action and aims to mobilise the neighbourhood.

A rare condition called Cloves Syndrome affects newborns. Less than 200 cases of Clove have been documented so far in the world. Anomalies in the bone, joints, or blood vessels define this congenital disease.

The PIK3CA gene can develop mutations, which lead to Cloves Syndrome. The severity of the symptoms and the age of the child both affect their long-term health. The more quickly symptoms are identified by doctors, the more effective the treatment can be.

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However, early detection is not always simple. Each child’s symptoms are very different from one another. What is worse than this? Although the disorder is present at birth, it might not be simple to spot right away.

Parents should generally be on the lookout for anything unusual, especially fatty masses on the back, belly, or flank. Check for wide spaces between the big toe and other toes; the majority of Cloves patients experience this symptom. Other signs may include bumps that resemble warts, spinal problems, limb abnormalities, or enlarged veins. There is currently no data to support a predisposition to this specific gene mutation. It happens on its own while the baby is still developing inside the womb of the mother.

Nothing is more upsetting than realising there is no way to prevent disease, especially when it affects young children. The goal of Cloves Syndrome Awareness Week is to raise public awareness. Better research can result in better treatments for Cloves patients with the help of education and empathy. The goal of Cloves Syndrome Awareness Day is to foster community solidarity and raise money for those who require medical care. Everyone should be able to access the right medical care and lead the best life possible. Discussion of it. Tell us your tales. The objective is to spread the word as widely as possible.

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Laid stars Stephanie Hsu and Zosia Mamet reveal the worst gifts their romantic partners gave them | Exclusive

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Laid stars Stephanie Hsu and Zosia Mamet reveal the worst gifts their romantic partners gave them | Exclusive

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Stephanie Hsu and Zosia Mamet talk about their new series Laid, and some of the horrors of dating as millennials.
Imagine a scenario where anyone and everyone you have ever been intimate with begins to die one by one. Is it a curse? If yes, then who is cursed? These are questions that Stephanie Hsu‘s Ruby battles with in the new zany comedy, Laid. Ahead of the show’s release, Stephanie and co-star Zosia Mamet spoke exclusively with HT about their roles, the show’s unique premise, and the horrors of dating as millennials. (Also read: Dune: Prophecy star Emily Watson on working with Tabu: ‘She is a true treasure’)

Stephanie Hsu on her character’s flawed morality

Laid, created by Nahnatchka Khan and Sally Bradford McKenna, is the story of Ruby (Stephanie Hsu), who discovers that all her sexual partners are dying one by one, and she must warn them. Helping her in this unique quest is her best friend AJ (Zosia). The fun thing about Laid is that the protagonists are not the usual likeable characters. “She is totally an anti-hero of our story. I really love that,” says Stephanie, referring to Ruby’s moral greyness. “I am not a perfect person and I love playing flawed characters. But it was difficult. The creators told me that she is a total narcissist. But narcissists don’t think they are one, so I had to figure out a way to love her. For me, playing Ruby was about getting into her psychology and finding the innocent part of her – which is that she just wants love,” the actor adds.

While sitcoms usually add the best friend as the voice of reason trope, Laid diverges from that, with AJ even zanier and more morally ambiguous than Ruby. Talking about playing such a colourful character, Zosia Mamet says, “When you play not-so-likable or zany characters, people don’t believe they are that way. I don’t think AJ wakes up every morning and thinks, ‘I am absolutely crazy’. It’s about trusting the writing and finding an organic way into these characters to make them seem grounded, real, and relatable.”

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Stephanie, Zosia reveal the worst gifts they received from partners

In Laid, Ruby gives the gift of death to the men she is with, even if that is inadvertent. Ask the women about the worst ‘gift’ a partner has ever given them, and the discussions veer into the unusual horrors of modern-day dating. “I got a vintage wooden duck decoy from someone. It was broken, and I thought, ‘What does this say about our relationship?’. They didn’t know me well enough to know if I’d want this but also that they gave me something old and ailing,” Zosia says with a laugh.

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Entertainment News Platforms – anyflix.in      
Construction Infrastructure and Mining News Platform – https://cimreviews.com/
General News Platform – https://ihtlive.com/

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